The life of Dídac and his parents is marked by complexity. With just four years, the little one coexists with two Ultrararas diseases, one of them progressive bone heteroplasia -known as the “stone syndrome” -, in addition to a bilateral deafness, a serious disability in speech and congenital heart disease. Despite this difficult scenario, obstacles do not cease to appear obstacles on the road.
The most recent, according to his mother, Eva Maura, is the exclusion of Dídac from the summer activities organized by the correspondible plan, an initiative of the Ministry of Equality aimed at facilitating family conciliation in the region.
Happy Final for Dídac: You will get the educational support you need
And Dídac is not the only one affected. Two other children with disabilities also in Tamarite de Litera (Huesca) They are in the same situation. Eva Maura denounces “the systematic breach of the rights of childhood with disabilities in access to these activities” within the co -responsible plan. One more year, it seems that the child will not be able to “enjoy” the program.
“Lack of resources”
The main reason that, summer after summer, they have given Eva Maura to justify the exclusion of her son is the “lack of resources.” The problem is that “they have no money” to hire support personnel who need the three minors with disabilities and dependence. Although the legislation does not establish a fixed ratio of monitors per child, it does force to adjust the necessary human supports based on disability and the degree of dependence of the minor.
Dídac goes to equine therapy therapies
In this case, according to Maura, two of the children have recognized degrees II and III of dependency, while the third is pending evaluation, although everything points to another grade III. According to the usual criteria, these three minors would require the attention of at least two specialized monitors.
Despite this refusal, the correspondible plan itself contemplates the need to prioritize certain groups, including people with disabilities. “They are children like any other and have the same right,” says Dídac’s mother. And he adds that “they are obliged to reserve places for people with disabilities in all leisure activities. It is not an option, it is a duty.”
The correspondible plan camp is the preferential option of the child’s mother for being more “affordable” economically. However, another option that exists in Tamarite de Litera is to go to a private camp that takes place in the same school center to which the three children attend. “It is our ideal option because children need a lot of routine due to their diseases. The school knows it and the patio is part of their home and life,” he explains. Dídac’s mother regrets having to rule out this alternative because “they would have to put special personnel to serve our children.” In addition to that many families cannot take on the price of this campus.
For this reason, the only option that they have left – he says – is to get them to be accepted on the correspondible plan campus that are organized in neighboring villages because the town of Oscense does not have this service.
“Sitting” in front of Pignatelli
To be heard, Eva Maura, on behalf of the three affected families, will go next Monday at 10 am at the gates of the Pignatelli building to publicly report the situation they are living. “I have nothing better to do to defend my son’s rights. I can’t think of anything better in the world,” he says.
