The Spanish Foundation for the Promotion of Research of the Amyotrophic lateral sclerosis (Fundela) has launched a new edition of the #Cuboheladado campaign that consists of throwing an ice water cube over this disease.
As reported on Monday, in 2014, Pete Frates, former baseball player and patient of amyotrophic lateral sclerosis, publicly challenged another person to throw a cube of water with ice on top, payrolling other people to do the same and donate funds for research in this disease.
The initiative, known as #ICEBucketChallenge or challenge of the ice water cube, was a worldwide social networks and promoted the approval of new treatments, the discovery of new genes, the development of new assistance technologies and new global research collaborations.
Therefore, one more year, Fundela launches the campaign, #Cubhelado/ ‘Mojate and donate Fundela!’. The initiative, which will last until August 31, resumes the challenge of #IzebucketChallenge to “get wet” and support the collection of funds for the investigation of the disease.
Progressive disease
ELA is a progressive and incurable neurodegenerative disease that, in its advanced stages, can cause death. Of rapid evolution, it affects fundamental functions such as mobility, swallowing, communication and breathing, seriously deteriorating the quality of life and autonomy of patients.
In this regard, the researcher and executive vice president of Fundela, Maite Solas, stressed that “the global impact of #Izebucketcallenge” significantly helped an exponential growth in the investigation in ELA worldwide, especially the first year. “
In fact, he added, the accumulated experience since the beginning of the campaign demonstrated the importance of mobilizing society to contribute to the collection of funds for research. “Each contribution, big or small, brings us one more step to a future without this devastating disease,” he concluded.
